To everyone who has joined us and stayed with us in this journey of sharing and voicing our experiences, I want to say thank you so much. This has become a great outlet for me and I truly am in awe of the connections and conversations I’ve been able to have with some of you that can relate to our experiences more than others. I can’t help but apologize for my 2- week hiatus, but “life was lifeing” as they say and we were doing what we have learned to do best… looking straight ahead and pushing forward. Trying to keep our eyes on the sparrow. During this time, I sat and reflected on the tone of some of my stories and felt the need to clarify a few things.

While some of my reflections have an inevitably sad and seemingly hopeless connection to them, I want you to be inspired nonetheless. Not by me and my family, but by the works of an eternally gracious and merciful Father. I can’t stress enough the way God has and continues to carry us through this process.

If I’m honest and transparent, this week kicked my medical parent behind and almost made me want to go back to that sunken hole I was in while we were in PICU. Hannah had two major appointments this week, one involving the process of her possibly undergoing corrective surgery for her hands and another that involved the panning out of her getting decannulated. Both of these meetings did not go all the way as planned. To make a long explanation short, the very thing that led to Hannah being trached and paved the way for our extensive hospital stay is back (TEF). Additionally, her vocal cords have been confirmed to have suffered nerve damage and need intervention. Currently, we are preparing ourselves for two major interventions in order to move forward in maximizing her health.

……

Yeah, that’s right. Talk about just the thing any medical parent needs to hear to trigger a PTSD episode. Regardless of my human emotions trying to get the best of me, I had to remind myself that the same God who took us out the first time, will do it again. Also, believe me, if it’s the Lord’s will for there to be a miraculous intervention on our behalf where none of those surgeries are needed, I know that he is more than able to interject. However, past circumstances have taught me that even if the storm around us doesn’t cease or lose its power, he’ll hold our hand until the wind calms down. That’s the God I serve, a God who calms the winds.

In real-time as my family and I experience these very real heart-wrenching moments and decisions, I want to remind you to seek Christ in all you do and he will take care of the rest. That’s the word he has for me and it’s one worthy of sharing.

The storm isn’t as intimidating when you have the King of kings and Lord of lords at your right-hand side.

He won’t fail, I promise.